I would like to take a second to let everyone know about the FSH conference- which is next weekend! I truly wish I could go. Info from fshsociety.org to follow...
2014 FSHD Connect
The FSH Society's Biennial International
Network Meeting for FSHD Patients, Clinicians and Researchers
Saturday-Sunday, August 16-17, 2014
The Westin Boston Waterfront, 425 Summer Street, Boston MA 02210
The 2014 FSHD Connect Meeting will bring
together hundreds of patients and family members with top researchers,
doctors and health experts for two days of immersive learning and
community-building. This year's meeting will feature talks by leaders
in the field of FSHD, including reports from major clinical and
research centers, question-and-answer panel sessions, and educational
workshops. Popular breakout sessions include topics that members have
requested, including teenagers and young adults, caregiving, traveling
and sports.
View the tentative Program and Agenda HERE
See faculty and breakout speakers HERE
Info and Online meeting registration HERE
Mail-in / fax meeting registration HERE
Visit: http://fshsociety.org/ for more info (info is on the homepage under News and Events).
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