Thursday, February 27, 2014

Drug Study

First FSH Muscular Dystrophy High-Throughput Drug Discovery Study Published...

 

Read more here.

Thursday, February 13, 2014

FSH Documentary

This is an amazing documentary about living with FSH musclular dystrophy.



It's worth the watch.

Tuesday, February 4, 2014

Winter Weather

While I love Vermont with all my heart, the winter weather is miserable.  I was watching the weather before I left New Mexico.  It was supposed to be fairly mild with no precipitation for the week.  It obviously couldn't be that easy for me.

I got home on a Sunday evening, it was humid out, but not raining.  I love the humidity.  I fly into Albany which is about an hour and a half from our house in south-western Vermont.

"Everything's covered with ice," my mom said to me as we are leaving the airport.  "Your father said to call when we get close and he'll put some salt on the deck." 


The roads weren't bad, the temperature wasn't too cold, but it had rained and then the temperature dropped, and everything was indeed covered with ice.  Icicles were hanging from the mailbox, the trees, the side of the house, and the driveway... oh our driveway, which I'm pretty sure every one of my friends has driven/slid off at some point during our high school career... it was like an ice skating rink.


After the challenge of getting me into the house when we got home (this included both my mom and dad helping me after I almost got taken out by one of our very large dogs), I stayed inside for three days.  I didn't have to go out, so why go?  It got a little warmer toward the end of the week so the terrain was not so treacherous.  I was able to go out and hang out with friends. 


Maybe I needed a reminder of how impossible winter weather is for me.  As I am considering leaving New Mexico for the east coast, I have to very strategically figure out where I can be that isn't too far from home, but also somewhere that doesn't get too much (if any) snow/freezing rain/ice.  Because I can't hack it.  It's not so much of an issue when I don't need to be anywhere, but if I had a job, had to run errands, etc., it would make it very difficult.  Just one more pain in the ass side effect of having a muscle disorder that affects your mobility.

Saturday, February 1, 2014

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