The other major
concern noted was, not knowing how much we should exercise. It is true that vigorous exercise can damage
muscles which, in our case, may not recover.
Several types of exercise were encouraged from other group members. Some of
these included: working out with a personal trainer/physical therapist, doing aquatics
therapy, and practicing hot or warm yoga (this is a favorite of mine!). One gentleman
shared that when he was first told he had MD, he was afraid to exercise- he
thought he would damage his muscles.
Because of this fear, he developed illnesses like diabetes and high
cholesterol. The body is meant to be in
motion, it’s meant to move. For those of
us with muscle disorders, loss of strength, and loss of coordination, this can
be a serious challenge. To the extent
that we can, though, we should all try to do some physical activity.
One important point we kept coming back to at the support
group meeting: even though we all have different muscle disorders, our
experiences are so similar. We experience
challenges in daily functioning, we often experience depression, anxiety, and there’s
always worry… even if we can keep the thoughts it the background most of the
time. The future is the hardest thing to
think about because we really can’t know
what to expect. We don’t know what our lives might be like, we
don’t know what other functions might
be lost, and we don’t know how bad it
will get.
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